Articles for Parents

Everything listed under: caregiving

  • Post Featured Image

    How to Care for Independent Aging Parents

    If you're in the midst of raising children or grandchildren, managing a career and caring for an aging parent or relative, you are not alone. In fact, a 2012 Pew Research report found that about half of all U.S. adults in their 40s or 50s have a parent age 65 or older and are raising a young child or financially supporting a grown child.

    When our parents have strong desires to remain independent and we have strong desires to care for them, it can be a real challenge.

    “I always like to focus on the things that are necessary for aging parents to stay as independent as possible,” says Amy Boulware, (LAP, MSW) Geriatric and Special Needs care manager for Chambliss Law. “The desire to remain independent is so strong, sometimes parents are willing to go to great lengths to keep up the appearance they are doing well on their own. I call this ‘malicious independence.’ They know they aren’t doing well, but they keep it from their family members. The sad thing is, often, they have already lost their independence because they are isolating themselves and not getting to do the things they enjoy doing.”

    Getting older and more fragile is a hard thing to deal with, but things do happen as we age. Boulware believes the goal of providing good care to our parents is to avoid making decisions in the midst of a crisis.

    “If we can help parents think about the things that are becoming more difficult for them such as going to the grocery store, cooking or keeping the house clean, then we can develop a plan to remove some of the burdens and help them stay as independent as possible,” Boulware says. 

    “Most people do estate planning, but few think about doing elder care planning,” Boulware shares. “Inevitably, something happens and then you are thrown into making quick decisions.”

    So, how do you have that hard conversation? Boulware suggests that you begin the process by asking questions like:

    • What are the things that are important to you as you age?
    • How can we work together to help you have quality care later in life? What does that look like for you? 
    • What can you afford?
    • What are the lifelong behaviors or details that make you tick that would be very important to know? For example, do you have a nightly routine, always have a certain snack, use something to help you sleep at night, etc.? There may be routines and rituals that you know nothing about that if discontinued, could cause agitation, fear or frustration for your parent. 
    • Who would you like to designate to make decisions should you become unable to do so? When do you think would be a good time to take care of that? 
    • If we see you struggling, how would you like us to handle that?

    If you try to have the conversation and your parents won’t let you, seek help from a trustworthy third party.

    This conversation in particular is often one we put off because it’s just plain uncomfortable and nobody wants to think about the end of life. Mapping out a plan ahead of time can pave the way for smoother transitions in the future. It can also strengthen your family relationships because the choices your parents make are truly theirs and it will be easier to honor them by following through with their wishes.

    This article was originally published in the Chattanooga Times Free Press on May 5, 2019.

  • Post Featured Image

    Aging Parents and Broken Families

    “In 2010, the first Baby Boomers turned 65. By 2030, 20 percent of America’s population will be over 65. As the Baby Boom generation moves into later life, the proportion of American elders who are divorced is skyrocketing," says researcher and author Elizabeth Marquardt. "The McKinsey Global Institute predicts that by 2015, 46 percent of boomers will live in divorced or unmarried households. These trends raise concerns for Baby Boomers as they age - and challenges for their grown children - as they become caregivers for their aging parents.”

    Marquardt and Amy Ziettlow are co-researchers in a 3-year project funded by the Lilly Endowment to investigate aging, death and dying in an era of high family fragmentation.

    Marquardt and Ziettlow are asking Gen Xers about things like:

    • How does your generation care for parents who may live far apart?

    • Is there an obligation to care for stepparents?

    • How do you grieve the loss of a parent when you have grieved the loss at the time of the divorce?

    • How do you honor your father and mother when a parent abandons their child?

    During an interview, one man said, "My parent’s cold war lasted until my dad died. Then my mom wanted me to mourn the loss of my dad with her. I had already mourned the loss of my father."

    “Married parents will do their best to protect their kids from the worst of a dying parents’ illness,” Marquardt says. “Fragmented families don’t have that luxury. In fact, many of the people interviewed talked about stepparents who don’t communicate anymore once the biological parent has passed away. Family change is not the only stressor. Longer life span, smaller family size and rapid economic changes have a ripple effect on family breakdown.

    “We have never thought forward to the impact of divorce on an aging nation,” Marquardt says. “Marriage used to be ‘until death do us part.’ Now it is ‘until it doesn’t feel good anymore.’ There are people who will die a lonely death due to family fragmentation. Leaders are asking who will be taking care of the old people.”

    Marquardt and Ziettlow have found there is a lot of hope with Generation X.

    “There is something about telling your story,” Marquardt says. “Out of sharing tears, raw memories and family craziness there is a hope that seems to emerge. They take a deep breath and at the end seem to feel a sense of relief.”

    Many of those interviewed said they agreed to do it because they wanted to honor their parent.

    “The golden rule doesn’t say, 'Do unto others as they have done to you,'” Marquardt says. “Of the Gen Xers we have interviewed, many say their only hope is to rise above what has happened to them and to 'Do unto others as you would have them do unto you.'”

    Who will be there to take care of you when you can’t take care of yourself?

  • Post Featured Image

    Helping People Finish Life Well

    Several years ago Carol Courtney found herself in an interesting position. Her mother called to say that her father was in the hospital due to breathing problems. As a healthcare professional, all kinds of things were running through Courtney’s mind.

    “I knew he had been having episodes where he would black out, but not pass out. This made me think he was having respiratory issues,” says Courtney. “As time went by and I kept asking my mother for information, I realized she did not know the names of my father’s doctors nor did she have any idea what was happening other than he had breathing issues.”

    As a nurse, Courtney knew that this lack of information was not uncommon for people who are unfamiliar with healthcare.

    “Most people are intimidated by doctors, are often afraid to ask questions or don’t know the right questions to ask,” Courtney says. “My goal was to get my father out of the hospital. In spite of trying to coach my mom from a distance on the kinds of questions she should ask, what to say and how to get to know the physicians, when my father was discharged she did not know his diagnosis or the care that would be required to keep him at home.”

    At this point, Courtney decided to take action. She wrote down every question she had before calling the physician. She knew from experience that if you ask the right questions you will get the answers.

    The key is knowing what to ask.

    "From my conversation with the physician I learned my dad had terminal pulmonary fibrosis and he was expected to live approximately three months,” Courtney says. “I was the one who told my parents about pulmonary fibrosis, what the coming days would probably look like and what we needed to do to make this time as pleasant as possible.”

    This is when things tend to get tough for families, explains Courtney. The stress can fracture a family’s ‘fault lines’ and lead to a falling out - right at the time when the dying person needs their support.

    “I knew we had a very short amount of time to do what I considered important business,” Courtney says. “My mom emailed all of Dad’s relatives and friends and explained that he was terminally ill. She invited all of them to come for a visit as soon as possible. My dad died 11 weeks after being discharged from the hospital. But, in those 11 weeks, 32 people came to see my father. We laughed, cried, shared stories and truly enjoyed each other’s company.”

    Courtney's sons brought their grandfather tons of chocolate when they came to visit him. He loved chocolate, but hadn’t been allowed to have it because of high cholesterol. They had a serious party!

    “When my father died, his funeral was truly a celebration of his life,” Courtney says. “This whole experience changed my focus in life. I realized I was passionate about helping people finish life well. My goal is for people to have reconciliation and celebration before they die.”

    Most people don’t want to think about dying or planning what they want that process to look like. That includes arranging their funeral.

    “Talking about the end of life and what you want it to look like with your spouse and children is revolutionary,” Courtney says. “I encourage people to plan and communicate about what they want and how their family and friends can help. They can take a methodical and thorough approach, and end life well.”